Living and playing with Lymphoedema: Alejandro's Story
VASCERN ERN
Living and playing with Lymphoedema: Alejandro's Story
0:36
Rare Disease Day 2025
VASCERN ERN
Rare Disease Day 2025
4:09
Varicose Veins in Vascular EDS Syndrome: Causes, Symptoms & Safe Treatment Options
VASCERN ERN
Varicose Veins in Vascular EDS Syndrome: Causes, Symptoms & Safe Treatment Options
37:51
Apply to VASCERN Summer School 2025 by November 11,2024! 👉 http://bit.ly/4e2Hpwk #medicalstudent
VASCERN ERN
Apply to VASCERN Summer School 2025 by November 11,2024! 👉 http://bit.ly/4e2Hpwk #medicalstudent
0:47
Is there a Caucasian Type of Moyamoya?
VASCERN ERN
Is there a Caucasian Type of Moyamoya?
13:24
Bewährtes und Neues zur Moyamoya-Angiopathie
VASCERN ERN
Bewährtes und Neues zur Moyamoya-Angiopathie
1:06:05
How can VASCERN help you?
VASCERN ERN
How can VASCERN help you?
3:29
How does the decrease in collagen production with age affect the arteries? #ehlersdanlossyndrome
VASCERN ERN
How does the decrease in collagen production with age affect the arteries? #ehlersdanlossyndrome
0:38
Hereditary Hemorrhagic Telangiectasia (HHT) and Pregnancy
VASCERN ERN
Hereditary Hemorrhagic Telangiectasia (HHT) and Pregnancy
1:17:59
Pregnancy Series: Pregnancy and Lymphedema
VASCERN ERN
Pregnancy Series: Pregnancy and Lymphedema
4:42
Pregnancy Series: Delivery and Postpartum care and Lymphedema
VASCERN ERN
Pregnancy Series: Delivery and Postpartum care and Lymphedema
3:47
Pregnancy Series: Family Planning and Lymphedema
VASCERN ERN
Pregnancy Series: Family Planning and Lymphedema
5:11
Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2: Expert Q&A webinar
VASCERN ERN
Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2: Expert Q&A webinar
1:02:40
Everything you wanted to know about vEDS: Expert Q&A
VASCERN ERN
Everything you wanted to know about vEDS: Expert Q&A
1:00:40
Genetics and Primary Lymphedema: Q&A with a Clinical Genetics Expert
VASCERN ERN
Genetics and Primary Lymphedema: Q&A with a Clinical Genetics Expert
44:16
Genetic Counseling in Heritable Thoracic Aortic Diseases: What You Need to Know
VASCERN ERN
Genetic Counseling in Heritable Thoracic Aortic Diseases: What You Need to Know
5:27
VASCERN Rare Disease Day Video 2023
VASCERN ERN
VASCERN Rare Disease Day Video 2023
6:22
Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
VASCERN ERN
Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
41:22
What Marfan Patients Can Do Before and After Aortic Surgery: Expert Insights with Prof. Kallenbach
VASCERN ERN
What Marfan Patients Can Do Before and After Aortic Surgery: Expert Insights with Prof. Kallenbach
1:06:08
Aortic Surgery in Marfan Syndrome Explained
VASCERN ERN
Aortic Surgery in Marfan Syndrome Explained
32:41
HHT and Nosebleeds
VASCERN ERN
HHT and Nosebleeds
1:24:06
Diagnostic and Management Pathway for Capillary Malformations
VASCERN ERN
Diagnostic and Management Pathway for Capillary Malformations
51:13
Rare Disease Day Video
VASCERN ERN
Rare Disease Day Video
3:14
Lymphedema from a teenager's perspective
VASCERN ERN
Lymphedema from a teenager's perspective
2:35
Diagnostic and Management Pathway for Venous Malformations
VASCERN ERN
Diagnostic and Management Pathway for Venous Malformations
58:17
Leo and the FAIR registry
VASCERN ERN
Leo and the FAIR registry
2:43
Diagnostic and Management Pathway for Lymphatic Malformations
VASCERN ERN
Diagnostic and Management Pathway for Lymphatic Malformations
49:56
Diagnostic and Management Pathway for Severe and Rare Infantile Hemangiomas | VASCERN Webinar Replay
VASCERN ERN
Diagnostic and Management Pathway for Severe and Rare Infantile Hemangiomas | VASCERN Webinar Replay
55:11
Genetic Testing for Primary Lymphedema: A Mother's Perspective
VASCERN ERN
Genetic Testing for Primary Lymphedema: A Mother's Perspective
1:31
On Collagen, Ehlers-Danlos Syndromes, and Vascular Fragility: What's in a name? | Webinar Replay
VASCERN ERN
On Collagen, Ehlers-Danlos Syndromes, and Vascular Fragility: What's in a name? | Webinar Replay
57:42
Hereditary Hemorrhagic Telangiectasia (HHT) and the Lungs: Insights and Q&A | Webinar Replay
VASCERN ERN
Hereditary Hemorrhagic Telangiectasia (HHT) and the Lungs: Insights and Q&A | Webinar Replay
54:52
Classification of Vascular Anomalies | Webinar Replay
VASCERN ERN
Classification of Vascular Anomalies | Webinar Replay
1:21:46
Deleting a Panel
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Deleting a Panel
0:33
Enrolling a Patient
VASCERN ERN
Enrolling a Patient
3:03
Inviting Panel Members
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Inviting Panel Members
1:21
Scheduling Meeting
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Scheduling Meeting
1:31
Uploading Medical Documents
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Uploading Medical Documents
1:27
Writing an Outcome and Closing a Panel
VASCERN ERN
Writing an Outcome and Closing a Panel
2:40
Downloading Dicom studies into Desktop
VASCERN ERN
Downloading Dicom studies into Desktop
1:37
Switching between Webex and CPMS
VASCERN ERN
Switching between Webex and CPMS
0:31
Infections and Lymphedema | Webinar Replay
VASCERN ERN
Infections and Lymphedema | Webinar Replay
46:50
VASCERN supports Rare Disease Day!
VASCERN ERN
VASCERN supports Rare Disease Day!
3:52
What is an Acute Aortic Dissection?
VASCERN ERN
What is an Acute Aortic Dissection?
9:50
What is a Chronic Aortic Dissection?
VASCERN ERN
What is a Chronic Aortic Dissection?
9:43
How is the Aorta Monitored?
VASCERN ERN
How is the Aorta Monitored?
4:19
What is Aortic Root Replacement and When is it Indicated?
VASCERN ERN
What is Aortic Root Replacement and When is it Indicated?
8:57
What to Know Before and During Pregnancy in Heritable Thoracic Aortic Diseases (HTAD)
VASCERN ERN
What to Know Before and During Pregnancy in Heritable Thoracic Aortic Diseases (HTAD)
10:01
Seven Signs of Marfan Syndrome
VASCERN ERN
Seven Signs of Marfan Syndrome
7:09
PIK3CA Gene and Related Vascular Malformations
VASCERN ERN
PIK3CA Gene and Related Vascular Malformations
1:45
Mobile App Dataset Editing
VASCERN ERN
Mobile App Dataset Editing
1:27
Secure Link using HCP Anywhere
VASCERN ERN
Secure Link using HCP Anywhere
0:33
HTAD and COVID-19: Expert Q&A Session | Webinar Replay
VASCERN ERN
HTAD and COVID-19: Expert Q&A Session | Webinar Replay
1:06:56
Introduction to Klippel-Trenaunay Syndrome (KTS)
VASCERN ERN
Introduction to Klippel-Trenaunay Syndrome (KTS)
1:17
Treatment for lymphatic malformations
VASCERN ERN
Treatment for lymphatic malformations
3:51
The lymphatic system & lymphatic malformations
VASCERN ERN
The lymphatic system & lymphatic malformations
5:14
Lymphedema from a child's perspective
VASCERN ERN
Lymphedema from a child's perspective
1:01
Vascular Ehlers-Danlos syndrome: Introduction and new criteria
VASCERN ERN
Vascular Ehlers-Danlos syndrome: Introduction and new criteria
13:05
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 3 - Other rarer types of EDS
VASCERN ERN
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 3 - Other rarer types of EDS
5:45
Clinical Features and Diagnostic criteria of vascular Ehlers-Danlos syndrome (vEDS) - Part 1
VASCERN ERN
Clinical Features and Diagnostic criteria of vascular Ehlers-Danlos syndrome (vEDS) - Part 1
5:54
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 2 - Kyphoscoliotic EDS
VASCERN ERN
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 2 - Kyphoscoliotic EDS
3:05
Genetics of vascular EDS: Part 2 - Pathogenic variants in COL3A1: dominant negative
VASCERN ERN
Genetics of vascular EDS: Part 2 - Pathogenic variants in COL3A1: dominant negative
4:46
Monitoring and Management of vascular Ehlers-Danlos syndrome (vEDS) - Part 3
VASCERN ERN
Monitoring and Management of vascular Ehlers-Danlos syndrome (vEDS) - Part 3
5:07
Overview of animal studies in vascular Ehlers-Danlos syndrome (vEDS)
VASCERN ERN
Overview of animal studies in vascular Ehlers-Danlos syndrome (vEDS)
15:46
Structure of the Medium-Sized Arteries Working Group (MSA WG) in VASCERN
VASCERN ERN
Structure of the Medium-Sized Arteries Working Group (MSA WG) in VASCERN
6:32
Organisations of services in the UK
VASCERN ERN
Organisations of services in the UK
6:00
Natural history and complications of vascular Ehlers-Danlos syndrome (vEDS) - Part 2
VASCERN ERN
Natural history and complications of vascular Ehlers-Danlos syndrome (vEDS) - Part 2
6:55
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 1- Introduction, Classical EDS
VASCERN ERN
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 1- Introduction, Classical EDS
7:23
Genetics of vascular EDS: Part 3 - Pathogenic variants in COL3A1 : haplo-insufficiency
VASCERN ERN
Genetics of vascular EDS: Part 3 - Pathogenic variants in COL3A1 : haplo-insufficiency
2:35
RaDiCo-SEDVasc (The French Rare Disease Cohort on Vascular Ehlers-Danlos syndrome)
VASCERN ERN
RaDiCo-SEDVasc (The French Rare Disease Cohort on Vascular Ehlers-Danlos syndrome)
12:08
Genetics of vascular Ehlers-Danlos syndrome (vEDS) : Part 1 - Pathogenic variants in COL3A1
VASCERN ERN
Genetics of vascular Ehlers-Danlos syndrome (vEDS) : Part 1 - Pathogenic variants in COL3A1
4:13
Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 2 - Is IVF safe in vEDS patients?
VASCERN ERN
Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 2 - Is IVF safe in vEDS patients?
6:12
Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 1
VASCERN ERN
Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 1
8:32
Medium sized artery disease in TGF-beta vasculopathies or syndromic aortopathies
VASCERN ERN
Medium sized artery disease in TGF-beta vasculopathies or syndromic aortopathies
17:25
Role of patient advocates in a European Reference Network
VASCERN ERN
Role of patient advocates in a European Reference Network
4:08
Hereditary Haemorrhagic Telangiectasia from VASCERN HHT
VASCERN ERN
Hereditary Haemorrhagic Telangiectasia from VASCERN HHT
4:48
Management of Vascular Anomalies
VASCERN ERN
Management of Vascular Anomalies
2:12
Cellulitis / Erysipelas in Pediatric and Primary Lymphedema
VASCERN ERN
Cellulitis / Erysipelas in Pediatric and Primary Lymphedema
3:37
Arterial Complications of Vascular Ehlers-Danlos Syndrome (vEDS)
VASCERN ERN
Arterial Complications of Vascular Ehlers-Danlos Syndrome (vEDS)
3:10
Unmet medical needs in vEDS - patients perspective
VASCERN ERN
Unmet medical needs in vEDS - patients perspective
3:28
What is Heritable Thoracic Aortic Disease (HTAD)?
VASCERN ERN
What is Heritable Thoracic Aortic Disease (HTAD)?
4:02
Gastrointestinal Complications in vascular Ehlers-Danlos Syndrome (vEDS)
VASCERN ERN
Gastrointestinal Complications in vascular Ehlers-Danlos Syndrome (vEDS)
2:45
Multi-disciplinary Expertise Teams for Vascular Anomalies
VASCERN ERN
Multi-disciplinary Expertise Teams for Vascular Anomalies
0:56
Le Sport et le Syndrome de Marfan
VASCERN ERN
Le Sport et le Syndrome de Marfan
1:52
Diagnostic Approaches for Vascular Anomalies
VASCERN ERN
Diagnostic Approaches for Vascular Anomalies
3:20
Compression in Pediatric and Primary Lymphedema
VASCERN ERN
Compression in Pediatric and Primary Lymphedema
1:59
Classification of Vascular Anomalies
VASCERN ERN
Classification of Vascular Anomalies
2:04
3 a week - the importance of exercise in Marfan and HTAD
VASCERN ERN
3 a week - the importance of exercise in Marfan and HTAD
3:37
Kurs i Sällsynta Diagnoser
VASCERN ERN
Kurs i Sällsynta Diagnoser
10:03
Rare Disease Course for Residents
VASCERN ERN
Rare Disease Course for Residents
12:08
Information video for patients and healthcare professionals about ERNs
VASCERN ERN
Information video for patients and healthcare professionals about ERNs
3:01
An Overview of Pediatric and Primary Lymphedema
VASCERN ERN
An Overview of Pediatric and Primary Lymphedema
7:11
Marfan Syndrome - Diagnosis by Prof Julie De Backer
VASCERN ERN
Marfan Syndrome - Diagnosis by Prof Julie De Backer
8:21
5. Importance and goals of AD Awareness Day by Shahrezade Miceli
VASCERN ERN
5. Importance and goals of AD Awareness Day by Shahrezade Miceli
10:50
9. Information technology for diagnosis and follow-up by Alessia Paglialonga
VASCERN ERN
9. Information technology for diagnosis and follow-up by Alessia Paglialonga
10:50
8. Stefano Maullu at Aortic Dissection Awareness Day 2017
VASCERN ERN
8. Stefano Maullu at Aortic Dissection Awareness Day 2017
3:54
3 Genetic basis of Aortic Dissection by Dr. Susanna Marelli
VASCERN ERN
3 Genetic basis of Aortic Dissection by Dr. Susanna Marelli
10:46
18. Type A Aortic Dissection by Prof Carlo Antona
VASCERN ERN
18. Type A Aortic Dissection by Prof Carlo Antona
7:05
10. Maria Carla Favini from the J. Peter Onlus Association
VASCERN ERN
10. Maria Carla Favini from the J. Peter Onlus Association
10:44
13. Prof Marcelo Ferreira: Interviewing Survivors of Aortic Dissection
VASCERN ERN
13. Prof Marcelo Ferreira: Interviewing Survivors of Aortic Dissection
10:31
12. Paolo Federici presents the VASCERN patient group (ePAG)
VASCERN ERN
12. Paolo Federici presents the VASCERN patient group (ePAG)
7:20