3 a week - the importance of exercise in Marfan and HTAD

3 a week - the importance of exercise in Marfan and related Heritable Thoracic Aortic Diseases (HTAD) by Prof. Guillaume Jondeau, Cardiologist, Assistance Publique-Hôpitaux de Paris, Hôpital Bichat-Claude Bernard, Paris, France and Lise Murphy, European Patient Advocacy Group (ePAG) Patient Advocate for HTAD, Svenska Marfanföreningen, Sweden.

This Pill of Knowledge (PoK) features a conversation between a patient and doctor about the importance of physical activity and what exercise is suitable for patients with Marfan syndrome. It aims to encourage Marfan syndrome patients to participate in a suitable form of exercise 3 times a week.

Video in English.

PoKs are the deliverable for VASCERN Work Package 4 on Pills of Knowledge, defined as short single video lessons (of approximately 3-5 minutes long) in which an expert talks about a specific topic that has been selected and validated by the Rare Disease Working Groups (RDWGs).

To learn more about the HTAD-WG: vascern.eu/expertise/rare-diseases-wgs/aorta-wg/

To learn more about VASCERN, please visit our website: www.vascern.eu