VASCERN ERN
Living and playing with Lymphoedema: Alejandro's Story
0:36
VASCERN ERN
Rare Disease Day 2025
4:09
VASCERN ERN
Varicose Veins in Vascular EDS Syndrome: Causes, Symptoms & Safe Treatment Options
37:51
VASCERN ERN
Apply to VASCERN Summer School 2025 by November 11,2024! 👉 http://bit.ly/4e2Hpwk #medicalstudent
0:47
VASCERN ERN
Is there a Caucasian Type of Moyamoya?
13:24
VASCERN ERN
Bewährtes und Neues zur Moyamoya-Angiopathie
1:06:05
VASCERN ERN
How can VASCERN help you?
3:29
VASCERN ERN
How does the decrease in collagen production with age affect the arteries? #ehlersdanlossyndrome
0:38
VASCERN ERN
Hereditary Hemorrhagic Telangiectasia (HHT) and Pregnancy
1:17:59
VASCERN ERN
Pregnancy Series: Pregnancy and Lymphedema
4:42
VASCERN ERN
Pregnancy Series: Delivery and Postpartum care and Lymphedema
3:47
VASCERN ERN
Pregnancy Series: Family Planning and Lymphedema
5:11
VASCERN ERN
Everything you wanted to know about Vascular Ehlers-Danlos Syndrome Part 2: Expert Q&A webinar
1:02:40
VASCERN ERN
Everything you wanted to know about vEDS: Expert Q&A
1:00:40
VASCERN ERN
Genetics and Primary Lymphedema: Q&A with a Clinical Genetics Expert
44:16
VASCERN ERN
Genetic Counseling in Heritable Thoracic Aortic Diseases: What You Need to Know
5:27
VASCERN ERN
VASCERN Rare Disease Day Video 2023
6:22
VASCERN ERN
Pregnancy and PGD in Vascular Ehlers Danlos Syndrome
41:22
VASCERN ERN
What Marfan Patients Can Do Before and After Aortic Surgery: Expert Insights with Prof. Kallenbach
1:06:08
VASCERN ERN
Aortic Surgery in Marfan Syndrome Explained
32:41
VASCERN ERN
HHT and Nosebleeds
1:24:06
VASCERN ERN
Diagnostic and Management Pathway for Capillary Malformations
51:13
VASCERN ERN
Rare Disease Day Video
3:14
VASCERN ERN
Lymphedema from a teenager's perspective
2:35
VASCERN ERN
Diagnostic and Management Pathway for Venous Malformations
58:17
VASCERN ERN
Leo and the FAIR registry
2:43
VASCERN ERN
Diagnostic and Management Pathway for Lymphatic Malformations
49:56
VASCERN ERN
Diagnostic and Management Pathway for Severe and Rare Infantile Hemangiomas | VASCERN Webinar Replay
55:11
VASCERN ERN
Genetic Testing for Primary Lymphedema: A Mother's Perspective
1:31
VASCERN ERN
On Collagen, Ehlers-Danlos Syndromes, and Vascular Fragility: What's in a name? | Webinar Replay
57:42
VASCERN ERN
Hereditary Hemorrhagic Telangiectasia (HHT) and the Lungs: Insights and Q&A | Webinar Replay
54:52
VASCERN ERN
Classification of Vascular Anomalies | Webinar Replay
1:21:46
VASCERN ERN
Deleting a Panel
0:33
VASCERN ERN
Enrolling a Patient
3:03
VASCERN ERN
Inviting Panel Members
1:21
VASCERN ERN
Scheduling Meeting
1:31
VASCERN ERN
Uploading Medical Documents
1:27
VASCERN ERN
Writing an Outcome and Closing a Panel
2:40
VASCERN ERN
Downloading Dicom studies into Desktop
1:37
VASCERN ERN
Switching between Webex and CPMS
0:31
VASCERN ERN
Infections and Lymphedema | Webinar Replay
46:50
VASCERN ERN
VASCERN supports Rare Disease Day!
3:52
VASCERN ERN
What is an Acute Aortic Dissection?
9:50
VASCERN ERN
What is a Chronic Aortic Dissection?
9:43
VASCERN ERN
How is the Aorta Monitored?
4:19
VASCERN ERN
What is Aortic Root Replacement and When is it Indicated?
8:57
VASCERN ERN
What to Know Before and During Pregnancy in Heritable Thoracic Aortic Diseases (HTAD)
10:01
VASCERN ERN
Seven Signs of Marfan Syndrome
7:09
VASCERN ERN
PIK3CA Gene and Related Vascular Malformations
1:45
VASCERN ERN
Mobile App Dataset Editing
1:27
VASCERN ERN
Secure Link using HCP Anywhere
0:33
VASCERN ERN
HTAD and COVID-19: Expert Q&A Session | Webinar Replay
1:06:56
VASCERN ERN
Introduction to Klippel-Trenaunay Syndrome (KTS)
1:17
VASCERN ERN
Treatment for lymphatic malformations
3:51
VASCERN ERN
The lymphatic system & lymphatic malformations
5:14
VASCERN ERN
Lymphedema from a child's perspective
1:01
VASCERN ERN
Vascular Ehlers-Danlos syndrome: Introduction and new criteria
13:05
VASCERN ERN
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 3 - Other rarer types of EDS
5:45
VASCERN ERN
Clinical Features and Diagnostic criteria of vascular Ehlers-Danlos syndrome (vEDS) - Part 1
5:54
VASCERN ERN
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 2 - Kyphoscoliotic EDS
3:05
VASCERN ERN
Genetics of vascular EDS: Part 2 - Pathogenic variants in COL3A1: dominant negative
4:46
VASCERN ERN
Monitoring and Management of vascular Ehlers-Danlos syndrome (vEDS) - Part 3
5:07
VASCERN ERN
Overview of animal studies in vascular Ehlers-Danlos syndrome (vEDS)
15:46
VASCERN ERN
Structure of the Medium-Sized Arteries Working Group (MSA WG) in VASCERN
6:32
VASCERN ERN
Organisations of services in the UK
6:00
VASCERN ERN
Natural history and complications of vascular Ehlers-Danlos syndrome (vEDS) - Part 2
6:55
VASCERN ERN
Arterial fragility in other types of Ehlers Danlos Syndrome: Part 1- Introduction, Classical EDS
7:23
VASCERN ERN
Genetics of vascular EDS: Part 3 - Pathogenic variants in COL3A1 : haplo-insufficiency
2:35
VASCERN ERN
RaDiCo-SEDVasc (The French Rare Disease Cohort on Vascular Ehlers-Danlos syndrome)
12:08
VASCERN ERN
Genetics of vascular Ehlers-Danlos syndrome (vEDS) : Part 1 - Pathogenic variants in COL3A1
4:13
VASCERN ERN
Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 2 - Is IVF safe in vEDS patients?
6:12
VASCERN ERN
Pregnancy in vascular Ehlers-Danlos syndrome (vEDS) – Part 1
8:32
VASCERN ERN
Medium sized artery disease in TGF-beta vasculopathies or syndromic aortopathies
17:25
VASCERN ERN
Role of patient advocates in a European Reference Network
4:08
VASCERN ERN
Hereditary Haemorrhagic Telangiectasia from VASCERN HHT
4:48
VASCERN ERN
Management of Vascular Anomalies
2:12
VASCERN ERN
Cellulitis / Erysipelas in Pediatric and Primary Lymphedema
3:37
VASCERN ERN
Arterial Complications of Vascular Ehlers-Danlos Syndrome (vEDS)
3:10
VASCERN ERN
Unmet medical needs in vEDS - patients perspective
3:28
VASCERN ERN
What is Heritable Thoracic Aortic Disease (HTAD)?
4:02
VASCERN ERN
Gastrointestinal Complications in vascular Ehlers-Danlos Syndrome (vEDS)
2:45
VASCERN ERN
Multi-disciplinary Expertise Teams for Vascular Anomalies
0:56
VASCERN ERN
Le Sport et le Syndrome de Marfan
1:52
VASCERN ERN
Diagnostic Approaches for Vascular Anomalies
3:20
VASCERN ERN
Compression in Pediatric and Primary Lymphedema
1:59
VASCERN ERN
Classification of Vascular Anomalies
2:04
VASCERN ERN
3 a week - the importance of exercise in Marfan and HTAD
3:37
VASCERN ERN
Kurs i Sällsynta Diagnoser
10:03
VASCERN ERN
Rare Disease Course for Residents
12:08
VASCERN ERN
Information video for patients and healthcare professionals about ERNs
3:01
VASCERN ERN
An Overview of Pediatric and Primary Lymphedema
7:11
VASCERN ERN
Marfan Syndrome - Diagnosis by Prof Julie De Backer
8:21
VASCERN ERN
5. Importance and goals of AD Awareness Day by Shahrezade Miceli
10:50
VASCERN ERN
9. Information technology for diagnosis and follow-up by Alessia Paglialonga
10:50
VASCERN ERN
8. Stefano Maullu at Aortic Dissection Awareness Day 2017
3:54
VASCERN ERN
3 Genetic basis of Aortic Dissection by Dr. Susanna Marelli
10:46
VASCERN ERN
18. Type A Aortic Dissection by Prof Carlo Antona
7:05
VASCERN ERN
10. Maria Carla Favini from the J. Peter Onlus Association
10:44
VASCERN ERN
13. Prof Marcelo Ferreira: Interviewing Survivors of Aortic Dissection
10:31
VASCERN ERN
12. Paolo Federici presents the VASCERN patient group (ePAG)
7:20
VASCERN ERN
20. Clinical presentation of Type B Dissection by Dr Andrea Melloni
7:01
VASCERN ERN
49 Prof Franco Grego at AD Awareness Day
6:39
VASCERN ERN
24. Prof Stefano Bonardelli at AD Awareness Day 2017
6:36
VASCERN ERN
43. Post-dissection aneurysm: presentation of a complex case by Prof Marcelo Ferreira
7:44
VASCERN ERN
52. Dr Francesca Bianchi at AD Awareness Day 2017
6:04
VASCERN ERN
28. Heike Caravati at AD Awareness Day 2017
5:28
VASCERN ERN
32 Dr Fabrizio Monaco at AD Awareness Day 2017
6:00
VASCERN ERN
40. Dr Alessandro Castiglioni at AD Awareness Day 2017
6:08
VASCERN ERN
50. From Petticoat to...Stabilize by Prof Germano melissano
8:24
VASCERN ERN
51. Post Dissection aneurym treatment with branched endografts by Prof Marcelo Ferreira
8:09
VASCERN ERN
45. Techniques of false lumen embolization of chronic dissection by Prof Nicola Mangialardi
7:43
VASCERN ERN
41. Aortic dissection in paediatric patients by Prof Alessandro Frigiola
9:28
VASCERN ERN
22. Diagnostic Imaging of Type B Dissection by Dr Enrico Rinaldi
5:38
VASCERN ERN
27. Dr Marco Cursi at AD Awareness Day 2017
6:03
VASCERN ERN
53. Dott. Ubaldo del Carro at AD Awareness Day 2017
6:21
VASCERN ERN
29. Vascular Anatomy of the spinal cord by Prof Germano Melissano
7:06
VASCERN ERN
33. The use of IVUS in Type B Dissection by Dr Roberto Silingardi
7:12
VASCERN ERN
38. Management of the aortic root by Prof Davide Pacini
8:27
VASCERN ERN
35. Dr Claudio Novali at AD Awareness Day 2017
7:10
VASCERN ERN
39. Importance of aortic arch involvement in Type B dissection by Prof Santi Trimarchi
6:16
VASCERN ERN
46. Prevention and treatment of visceral damage by Prof Patrizio M. Castelli
7:53
VASCERN ERN
21. Natural History of Chronic Type B Dissection by Prof Gianluca Faggioli
6:41
VASCERN ERN
42. Management of aortic arch dissection by Prof Davide Pacini
7:18
VASCERN ERN
48. Knickerboker and Candy plug techniques by Dr Enrico Rinaldi
6:37
VASCERN ERN
26. Prof Santi Trimarchi at AD Awareness Day 2017
5:40
VASCERN ERN
54. Open repair of chronic dissection with aneurysmal degeneration by Dr Domenico Baccellieri
6:30
VASCERN ERN
55. Renal protection during open repair of chronic Type B Dissection by Prof Yamume Tshomba
6:30
VASCERN ERN
56. ROTEM in the Aortic dissection open repair by Dr. Fabrizio Monaco
5:41
VASCERN ERN
57. Strategies for prevention of spinal cord ischemia by Prof Germano Melissano
5:08
VASCERN ERN
58. Treatment of Type B dissecting aneurysms under DHCA by Prof laurent Chiche
7:27
VASCERN ERN
1. Europe and Rare Disease by Prof Germano Melissano
6:45
VASCERN ERN
1 Welcome and brief introduction by all participants
19:09
VASCERN ERN
2 VASCERN Structure and organization
36:59
VASCERN ERN
3 VASCERN Patient Group (ePAG)
30:40
VASCERN ERN
4 VASCERN 1st Year Action Plan: State of Play
45:28
VASCERN ERN
5 The ERN Policy
13:07
VASCERN ERN
6 The ERN Collaborative Platform and the Clinical Patient Management System
9:00
VASCERN ERN
7 ERN Board of Member States views
15:06
VASCERN ERN
8 European Joint Programme on Rare Diseases Research: Opportunities for ERNs
21:01
VASCERN ERN
9 Q&A for Achievements, Challenges & Opportunities for ERNs
14:17
VASCERN ERN
10 VASCERN Terms of Reference for Validation by the Board
33:59
VASCERN ERN
11 Priorities for Work Packages: feedback from RDWG Chairs
14:18
VASCERN ERN
12 Transversal WGs - eHealth /Training and Education WG
15:02
VASCERN ERN
13 Transversal WGs - Patient Registry WG
21:09
VASCERN ERN
14 Funding
4:18
VASCERN ERN
15 New ERN call for new ERN members
2:23
VASCERN ERN
16 Participation in interERN WG: Monitoring
4:41
VASCERN ERN
17 Participation in interERN WG: Ethics and Legal Issues
7:36
VASCERN ERN
18 RD Action work for interERN participation
11:17
VASCERN ERN
19 Criteria for an event to be endorsed by VASCERN
4:24
VASCERN ERN
20 Registry: the FAIR principles
34:36
VASCERN ERN
An Overview of Hereditary Haemorrhagic Telangiectasia (HHT) by Prof Claire Shovlin
8:54
VASCERN ERN
Hereditary Haemorrhagic Telangiectasia (HHT) for ENT doctors by Prof Anette Kjeldsen
7:12
VASCERN ERN
2. VASCERN and Vascular Diseases - Dr. Alessandro Pini at Aortic Dissection Awareness Day 2017
16:05
VASCERN ERN
17. Genetics of Marfan Syndrome - Dr. Alessandro Pini at Aortic Dissection awareness Day 2017
6:48
VASCERN ERN
25. Insight into preoperative planning - Dr Tara Mastracci at Aortic Dissection Awareness Day 2017
6:37
VASCERN ERN
47. Complex stent grafts for the treatment of chronic dissection by Dr Tara Mastracci
6:34
VASCERN ERN
The ERN Strategy
8:12
VASCERN ERN
ERN testimonial - The story of Elisa (Italian subtitles)
5:00
VASCERN ERN
ERN testimonial - The story of Paula (Spanish subtitles)
4:04
VASCERN ERN
ERN testimonial - The story of Jasper (Dutch subtitles)
4:16
VASCERN ERN
ERN testimonial - The story of Daniel (French subtitles)
4:29
VASCERN ERN
ERN videoclip (subtitles in all languages )
1:34